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Lysosomal Diseases New Zealand - Latest News [Page 1]
Pharma company gives up on Pharmac, gives patients free drug
Wednesday, 3 May 2017, 12:37 pm | Lysosomal Diseases New Zealand
Sanofi Genzyme developed Myozyme, a complex biological treatment for Pompe disease, a Lysosomal disease, over ten years ago. Since that time funded treatment of affected patients has spread to 76 countries. Over that decade, NZ's drug purchasing agency ... More >>
Petition on access to medicines for rare diseases
Thursday, 8 December 2016, 10:33 am | Lysosomal Diseases New Zealand
Petition on access to medicines for rare diseases to be presented at 12.30pm, Tuesday 13 December 2016. More >>
Rare Disease Mum Abandoned by her local MP
Monday, 7 November 2016, 4:04 pm | Lysosomal Diseases New Zealand
For Samantha Lenik’s potential life-changing Petition to make it to Parliament, Samantha needs an MP to personally present the Petition to the House of Representatives. Unfortunately, Samantha’s local MP Mark Mitchell (National MP for Rodney) declined ... More >>
