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New Zealand Organisation for Rare Disorders - Latest News [Page 1]
Serious flaws in rare disorders medicine fund proposal
Thursday, 17 July 2014, 5:26 pm | New Zealand Organisation for Rare Disorders
Patient advocates are rallying support for submissions to Pharmac about the U-turn they have made on medicine funding for ultra-rare disorders. After repeated refusal to fund novel and expensive treatments for disorders that affect mostly just a handful ... More >>
NZORD: Pharmac proposal for change - Read it and weep?
Friday, 28 February 2014, 9:18 am | New Zealand Organisation for Rare Disorders
There’s lots of good things going on with awareness activities and fundraisers for various support groups, and good news stories about small but dedicated teams of researchers in New Zealand making steady progress in understanding some very difficult ... More >>
New Zealand Organisation for Rare Disorders - Issue #5 2013
Wednesday, 2 October 2013, 10:51 am | New Zealand Organisation for Rare Disorders
Opposition political parties promise an orphan drugs access programme for New Zealand. Professionals and academics provided crucial support for NZORD’s medicine access campaign. More >>
