Patient Voice Aotearoa - Latest News [Page 1]

Patients with rare disorders encouraged to leave NZ to live

Tuesday, 29 October 2019, 10:29 am | Patient Voice Aotearoa

These images were taken last week at Rotorua Hospital of three-year old Tama. Tama has a degenerative disease called Spinal Muscular Atrophy (SMA). There is a treatment called Spinraza that is revolutionary and is designed to stop the disease in its ... More >>

Deputy Prime Minister Admits Pharmac Needs More Money

Wednesday, 16 October 2019, 1:53 pm | Patient Voice Aotearoa

Patient Voice Aotearoa welcomes the comments made by the Deputy Prime Minister Winston Peters on ‘The Project’ on Friday last week. Peters stated “Right now…we know we are not spending nearly enough on pharmaceuticals and first world drugs…the ... More >>

Cancer Boss Insults Cancer Patients and their Families

Saturday, 28 September 2019, 1:16 pm | Patient Voice Aotearoa

Comments attributed to Diana Safarti, New Zealand’s Interim National Director of Cancer Control in today’s ‘National Portrait’ article on Stuff, have insulted a great many whose families are living with a loved one with advanced cancer. Safarti ... More >>

Patient Voice Aotearoa calls for Pharmac reform

Wednesday, 28 August 2019, 5:08 pm | Patient Voice Aotearoa

Patient Voice Aotearoa (PVA) has launched a petition calling for the Minister of Health to initiate an external reform of Pharmac and to double the agency’s budget immediately, with a plan to triple its budget over the next two years in order to ... More >>

Nine New Parliamentary Petitions launched for vital medicine

Thursday, 15 August 2019, 9:55 am | Patient Voice Aotearoa

In the last 10 months alone, 11 petitions have been delivered to Parliament calling for medicines to be funded by Pharmac. Today, another nine petitions have been launched by Patient Voice Aotearoa (PVA) members asking that life changing, saving and extending ... More >>

New Zealand Ranks Last in OECD for Medicines Access Again

Monday, 12 August 2019, 9:43 am | Patient Voice Aotearoa

The 2019 IQVIA ‘International Comparisons of Modern Medicines’ (ICoMM) Report, which compares the public funding of modern medicines in 20 OECD countries, paints a bleak picture for New Zealanders who desperately need access to medicines. Despite ... More >>

Too little, too late? Advocates underwhelmed by cancer plan

Monday, 5 August 2019, 10:07 am | Patient Voice Aotearoa

Just two days after the Parliamentary Health Select Committee quietly rejected Metavivors’ calls for Kadcyla and Palbociclib (Ibrance) to be funded for breast cancer sufferers and for an inquiry into Pharmac; Labour has today unveiled the first part of its ... More >>

 

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