Rare Disorders NZ - Latest News [Page 1]

Medicines access for cancer must also be Fair for Rare

Tuesday, 30 July 2019, 2:14 pm | Rare Disorders NZ

Rare Disorders NZ welcomes the National Party’s recent announcement on cancer care but calls on both the opposition and the coalition government to widen their medicines access proposals beyond cancer to include provision for people living with rare disorders. More >>

Announcement of new Chief Executive

Thursday, 27 June 2019, 3:00 pm | Rare Disorders NZ

Rare Disorders NZ is thrilled to confirm the appointment of Lisa Foster as Chief Executive. More >>

NZORD changes name to Rare Disorders NZ

Wednesday, 5 June 2019, 2:58 pm | Rare Disorders NZ

Today the New Zealand Organisation for Rare Disorders changes its name after 19 years of supporting thousands of families living with rare health conditions. More >>

 

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