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Crohn's and Colitis New Zealand - Latest News [Page 1]

CEO And Board Chair Swim With The Eels To Raise Money For Kids

Thursday, 18 January 2024, 9:15 am | Crohn's and Colitis New Zealand

In what was perhaps the most unusual display of self-sacrifice so far this year, the CEO and Board Chair of Crohn’s and Colitis NZ Charitable Trust (CCNZ) ventured into a pond, laden with the famed New Zealand longfin eel, also known as ōrea. It ... More >>

Crohn’s And Colitis Event At Parliament To Focus On The Unexpected Blessings Of Living With A Chronic Illness

Tuesday, 16 May 2023, 2:33 pm | Crohn's and Colitis New Zealand

On 19 May, at 5:15pm in the Grand Hall at Parliament, New Zealand will join fifty other countries in observing World IBD Day, a day that raises awareness about Crohn’s disease and ulcerative colitis (also known as Inflammatory Bowel Disease or “IBD”). ... More >>

Inflammatory Bowel Disease (IBD) Patients Celebrate Pharmac Decision

Tuesday, 11 October 2022, 6:17 pm | Crohn's and Colitis New Zealand

On 2 December 2020, braving the wind and rain, Crohn’s and Colitis NZ Charitable Trust led a march of patients and medical professionals to the steps of Parliament. The purpose was to present a petition with over thirty thousand signatures pleading ... More >>

World IBD Day 2022

Monday, 16 May 2022, 1:57 pm | Crohn's and Colitis New Zealand

There are over 5 million people worldwide who are challenged daily by the symptoms of Crohn’s disease and ulcerative colitis (also known as Inflammatory Bowel Disease or “IBD”). 20,000 of them live in our small country, which has the third highest ... More >>

World IBD Day 2021 – Exhibition At Parliament

Thursday, 20 May 2021, 7:04 am | Crohn's and Colitis New Zealand

Exhibiting their artistic talents, politicians and leaders across New Zealand have put up their hands to raise awareness of people living with chronic illnesses. On the 24th of May, an artistic installation called “Unmasking IBD” will be unveiled ... More >>

World IBD Day 2021

Tuesday, 11 May 2021, 11:35 am | Crohn's and Colitis New Zealand

Exhibiting their artistic talents, politicians and leaders across New Zealand have put up their hands to raise awareness of people living with chronic illnesses. On 24 May, an artistic installation called “Unmasking IBD” will be unveiled at the ... More >>

Upper Hutt City Council Endorses Nationwide Campaign For Toilet Access

Sunday, 4 April 2021, 5:57 pm | Crohn's and Colitis New Zealand

In January 2017 12-year-old Nicole Thornton petitioned Parliament, seeking access to workplace toilets for people with medical conditions when no public toilet was available. Nicole has Crohn’s disease. Like the more than 20,000 New Zealanders ... More >>

MPs To Visit Camp For Children And Teens With Crohn’s And Colitis

Monday, 4 January 2021, 6:01 am | Crohn's and Colitis New Zealand

On 4 January over seventy five children and teens with Crohn’s disease and ulcerative colitis from all over New Zealand will be arriving at Camp Carey in Waitakere, Auckland. They will be attending the seventh annual six day camp for children with these diseases. ... More >>

Local Teen With Crohn’s Disease Launches Nationwide Campaign For Toilet Access In Lower Hutt

Tuesday, 8 December 2020, 9:05 am | Crohn's and Colitis New Zealand

In January 2017 12-year-old Nicole Thornton petitioned Parliament, seeking access to workplace toilets for people with medical conditions when no public toilet was available. Nicole has Crohn’s disease. Like the more than 20,000 New Zealanders ... More >>

Local Teen With Crohn’s Disease Launches Nationwide Campaign For Toilet Access In Lower Hutt

Tuesday, 8 December 2020, 9:05 am | Crohn's and Colitis New Zealand

In January 2017 12-year-old Nicole Thornton petitioned Parliament, seeking access to workplace toilets for people with medical conditions when no public toilet was available. Nicole has Crohn’s disease. Like the more than 20,000 New Zealanders ... More >>

Outraged Patients To Present Petition With Over 30,000 Signatures To Ask For Funding For Desperately Needed Medication

Wednesday, 2 December 2020, 8:15 am | Crohn's and Colitis New Zealand

Sick of waiting for years for Pharmac to fund standard, current therapy to treat their diseases, patients with Crohn’s disease and ulcerative colitis are taking to the street to plead for ustekinumab, a medication that is funded in over 35 other ... More >>

Bowel Disease Patients To March On Pharmac And Parliament To Present 30,000+ Signature Petition

Friday, 27 November 2020, 8:49 am | Crohn's and Colitis New Zealand

On 2 December 2020, Crohn’s and Colitis NZ will lead a march of patients, supporters and medical specialists on Pharmac and Parliament to present a petition pleading for access to ustekinumab, an urgently-needed medication for New Zealanders suffering ... More >>

Prime Minister Committed To Pharmac Investigation, But Health Minister At Odds

Thursday, 15 October 2020, 11:52 am | Crohn's and Colitis New Zealand

On 30 September Prime Minister Jacinda Ardern committed to having an investigation into Pharmac’s decision-making processes, the same day she received an open letter endorsed by 105 medical professionals slamming Pharmac’s processes, but official ... More >>

Internationally- Respected Medical Specialist Slams Pharmac, Urges PM To Investigate

Thursday, 8 October 2020, 1:44 pm | Crohn's and Colitis New Zealand

In a blistering open letter to Prime Minister Ardern, world renowned expert in Crohn’s disease and ulcerative colitis, Professor Richard Gearry, blasts Pharmac for “gross obfuscation” around their refusal to fund a desperately needed medication for people ... More >>

Specialists Outraged By Lack Of Treatment For Bowel Disease

Tuesday, 25 August 2020, 8:03 am | Crohn's and Colitis New Zealand

Leading NZ gastroenterologists are petitioning the Government to urgently fund up-to-date therapy for severe Crohn’s disease and ulcerative colitis for patients for whom all other treatments have failed. Specialists treating these patients say the current ... More >>

Position Statement On Biosimilars

Thursday, 9 July 2020, 5:31 pm | Crohn's and Colitis New Zealand

Crohn’s and Colitis New Zealand Charitable Trust is a national organisation whose mission is to support people with Crohn’s disease and ulcerative colitis. Its Board of Trustees has approved a position statement regarding medications known as “biosimilars”. ... More >>

World Inflammatory Bowel Disease Day: The Quest To Make New Zealand More 'Patient-Friendly'

Tuesday, 19 May 2020, 6:50 am | Crohn's and Colitis New Zealand

Around the world over fifty countries recognise the 19th of May as World IBD Day. IBD (or Inflammatory Bowel Disease) refers to two diseases, Crohn’s disease and ulcerative colitis. For New Zealand these diseases carry particular significance. ... More >>

Impending National Health Crisis Inflammatory Bowel Disease

Thursday, 2 November 2017, 10:35 am | Crohn's and Colitis New Zealand

A new study on the burden of inflammatory bowel disease (IBD) in New Zealand shows we have one of the highest rates of IBD in the world and it is growing at an alarming rate. The study was released today by the Crohn’s & Colitis New Zealand Charitable ... More >>

We Need to Talk to You About Our Gums, Tums And Bums

Thursday, 18 May 2017, 2:44 pm | Crohn's and Colitis New Zealand

Crohn’s and Colitis New Zealand today called for kiwis to start talking about their stomach and bottom issues, to promote better understanding of inflammatory bowel diseases (IBD) to mark World IBD day on May 19. More >>

Crohn’s sufferer fights for access to workplace toilets

Tuesday, 31 January 2017, 9:30 am | Crohn's and Colitis New Zealand

Wellington, 31 January 2017: A 12-year-old girl with Crohn’s disease is presenting a petition to Labour MP, Hon Trevor Mallard on parliament steps today at 11am. The petition aims to change the law, guaranteeing the 15,000 – 20,000 New Zealanders ... More >>

 

 
 
 
 
 

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