Cystic Fibrosis New Zealand

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Cystic Fibrosis New Zealand - Latest News [Page 1]

Cystic Fibrosis Christmas Tree Festival Kicks Off At Wellington Airport

Friday, 24 November 2023, 12:22 pm | Cystic Fibrosis New Zealand

<img src="https://img.scoop.co.nz/stories/images/2311/d1b342d08e46d3d7cc89.jpeg" width="720" height="480"> A forest of 56 Christmas trees has sprouted in the Wellington Airport terminal to help families living with cystic ... More >>

Cystic Fibrosis NZ Supports Calls For Change Of Pharmac

Friday, 27 October 2023, 2:46 pm | Cystic Fibrosis New Zealand

Cystic Fibrosis NZ (CFNZ) is taking a stand alongside patients and patient advocates representing rare disorders and cancers, demanding immediate action to address the leadership and culture of Pharmac, New Zealand's pharmaceutical funding agency. Lisa ... More >>

Christmas Miracle For Cystic Fibrosis Community

Sunday, 4 December 2022, 7:11 pm | Cystic Fibrosis New Zealand

Pharmac announces agreement to fund Trikafta* for those aged 6 years and over After two and a half years of advocating for public funding of Trikafta , Cystic Fibrosis NZ (CFNZ) is absolutely thrilled that Pharmac and Vertex have reached a provisional ... More >>

Cystic Fibrosis Christmas Tree Festival Kicks Off At Wellington Airport

Thursday, 24 November 2022, 11:29 am | Cystic Fibrosis New Zealand

A forest of Christmas trees has sprouted in the Wellington Airport terminal to help families living with cystic fibrosis (CF). <img src="https://img.scoop.co.nz/stories/images/2211/80166100f7051a64638e.jpeg" width="720" height="480"> Wellington Airport chief executive ... More >>

Pharmac Says It Can’t Progress Trikafta

Friday, 16 September 2022, 10:37 am | Cystic Fibrosis New Zealand

Yet again, Pharmac has raised the hopes of Kiwis with cystic fibrosis only to shatter them. After months of what appeared to be encouraging progress, Cystic Fibrosis NZ (CFNZ) has been advised by Pharmac that, following its September medicines’ ranking ... More >>

Helping Kiwi Families With CF Breathe A Little Easier

Monday, 5 September 2022, 2:51 pm | Cystic Fibrosis New Zealand

As New Zealand emerges from the hibernation of winter, Cystic Fibrosis NZ has launched their Sweatember Fundraiser , incorporating their new proxy for kindness, FRED Bear a.k.a Sweaty Freddy . Sweatember is about using everyday activities to get moving ... More >>

Pharmac Estimates Trikafta Could Give People With CF Another 27 Years

Wednesday, 17 August 2022, 5:11 pm | Cystic Fibrosis New Zealand

Pharmac has today published the record of advice from the May Pharmacology and Therapeutics Committee (PTAC) meeting to again consider Vertex’s application for funding of Trikafta – a medicine to treat the underlying cause of cystic fibrosis (CF). Pharmac ... More >>

Cystic Fibrosis Is Cruel

Tuesday, 10 May 2022, 12:53 pm | Cystic Fibrosis New Zealand

May is CF Awareness Month , and the start of a new campaign from Cystic Fibrosis NZ inspired by three, simple and powerful words: CRUEL NEEDS KIND . Louise Bentley, Director from Energi Advertising says “From the briefing, we knew we needed a non-sugar-coated ... More >>

Funding Trikafta For Kiwis With Cystic Fibrosis - Setting The Record Straight

Thursday, 31 March 2022, 9:42 am | Cystic Fibrosis New Zealand

On Monday 28 March, Carmen Shanks presented her Parliamentary Petition to MP Shanan Halbert, urging the Government to fund Trikafta, the first medicine that can treat the cause of cystic fibrosis for the majority of those who have the condition. Since ... More >>

Kiwis With Cystic Fibrosis Don’t Have Time To Wait

Monday, 28 March 2022, 4:45 pm | Cystic Fibrosis New Zealand

A Parliamentary petition started by Carmen Shanks urging the Government to publicly fund Trikafta (a medicine that treats the underlying cause of cystic fibrosis) was presented to Labour MP Shanan Halbert, today. Mr Halbert accepted the petition on ... More >>

Cystic Fibrosis Community Disappointed With PTAC Recommendations

Wednesday, 23 February 2022, 5:04 pm | Cystic Fibrosis New Zealand

Lisa Burns CFNZ CEO New Zealand’s cystic fibrosis community received disappointing news today with a recommendation to Pharmac that reduces the priority for funding Trikafta from high to medium for 12 and over, and the decision be deferred for those ... More >>

Cystic Fibrosis Won’t Take A Break This Christmas

Tuesday, 30 November 2021, 10:49 am | Cystic Fibrosis New Zealand

Help make a difference by visiting the Cystic Fibrosis Christmas Tree Festival at Wellington Airport, 24 November – 9 January The harsh realities of life with cystic fibrosis (CF) can be especially tough on a child at Christmas. People with CF endure ... More >>

Kiwis challenged to Sweat for CF this September

Tuesday, 14 September 2021, 2:29 pm | Cystic Fibrosis New Zealand

SWEATEMBER is back for 2021, challenging Kiwis to commit to any sweaty activity throughout September to get fit and raise money for New Zealanders living with cystic fibrosis (CF). Created by Cystic Fibrosis NZ, the campaign aims to raise funds for ... More >>

New Zealanders Asked To Help Give A Brighter Future For Kiwis Living With Cystic Fibrosis

Monday, 3 May 2021, 1:48 pm | Cystic Fibrosis New Zealand

Cystic Fibrosis NZ is calling on the New Zealand public to help “give a future” for Kiwis with cystic fibrosis (CF) by supporting its annual appeal which runs from 1-31 May 2021. Living with CF is tough, time-consuming, and an emotional rollercoaster. ... More >>

Ashburton Man To Take On Gruelling 65 Hours Of Outdoor Bowls

Thursday, 26 November 2020, 9:56 am | Cystic Fibrosis New Zealand

At 7pm, December 2, Dan Hopkins will start the first of 65 gruelling hours of outdoor bowls at the Hampstead Bowling Club, Ashburton. Dan, a keen and competitive bowler, plans to bowl for 65 hours straight, with a 10-minute (bankable) break in each hour. ... More >>

Kiwis Challenged To Sweat For CF This September

Monday, 24 August 2020, 3:41 pm | Cystic Fibrosis New Zealand

SWEATEMBER challenges Kiwis to commit to any sweaty activity throughout September to get fit and raise money to support New Zealanders living with cystic fibrosis (CF). CF is a progressive, genetic condition that causes persistent lung infections ... More >>

Cystic Fibrosis NZ Mourns Loss Of Patron Sir Bob Elliott

Saturday, 22 August 2020, 2:09 pm | Cystic Fibrosis New Zealand

Cystic Fibrosis NZ, and the CF community, mourns the loss of their patron Sir Bob Elliott. Sir Bob made an extraordinary, lifelong contribution to cystic fibrosis, notably for his work on the new-born screening test, which he believed added 30 years ... More >>

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