Cystic Fibrosis New Zealand - Latest News [Page 1]

Cystic Fibrosis Is Cruel

Tuesday, 10 May 2022, 12:53 pm | Cystic Fibrosis New Zealand

May is CF Awareness Month , and the start of a new campaign from Cystic Fibrosis NZ inspired by three, simple and powerful words: CRUEL NEEDS KIND . Louise Bentley, Director from Energi Advertising says “From the briefing, we knew we needed a non-sugar-coated ... More >>

Funding Trikafta For Kiwis With Cystic Fibrosis - Setting The Record Straight

Thursday, 31 March 2022, 9:42 am | Cystic Fibrosis New Zealand

On Monday 28 March, Carmen Shanks presented her Parliamentary Petition to MP Shanan Halbert, urging the Government to fund Trikafta, the first medicine that can treat the cause of cystic fibrosis for the majority of those who have the condition. Since ... More >>

Kiwis With Cystic Fibrosis Don’t Have Time To Wait

Monday, 28 March 2022, 4:45 pm | Cystic Fibrosis New Zealand

A Parliamentary petition started by Carmen Shanks urging the Government to publicly fund Trikafta (a medicine that treats the underlying cause of cystic fibrosis) was presented to Labour MP Shanan Halbert, today. Mr Halbert accepted the petition on ... More >>

Cystic Fibrosis Community Disappointed With PTAC Recommendations

Wednesday, 23 February 2022, 5:04 pm | Cystic Fibrosis New Zealand

Lisa Burns CFNZ CEO New Zealand’s cystic fibrosis community received disappointing news today with a recommendation to Pharmac that reduces the priority for funding Trikafta from high to medium for 12 and over, and the decision be deferred for those ... More >>

Cystic Fibrosis Won’t Take A Break This Christmas

Tuesday, 30 November 2021, 10:49 am | Cystic Fibrosis New Zealand

Help make a difference by visiting the Cystic Fibrosis Christmas Tree Festival at Wellington Airport, 24 November – 9 January The harsh realities of life with cystic fibrosis (CF) can be especially tough on a child at Christmas. People with CF endure ... More >>

Kiwis challenged to Sweat for CF this September

Tuesday, 14 September 2021, 2:29 pm | Cystic Fibrosis New Zealand

SWEATEMBER is back for 2021, challenging Kiwis to commit to any sweaty activity throughout September to get fit and raise money for New Zealanders living with cystic fibrosis (CF). Created by Cystic Fibrosis NZ, the campaign aims to raise funds for ... More >>

New Zealanders Asked To Help Give A Brighter Future For Kiwis Living With Cystic Fibrosis

Monday, 3 May 2021, 1:48 pm | Cystic Fibrosis New Zealand

Cystic Fibrosis NZ is calling on the New Zealand public to help “give a future” for Kiwis with cystic fibrosis (CF) by supporting its annual appeal which runs from 1-31 May 2021. Living with CF is tough, time-consuming, and an emotional rollercoaster. ... More >>

Ashburton Man To Take On Gruelling 65 Hours Of Outdoor Bowls

Thursday, 26 November 2020, 9:56 am | Cystic Fibrosis New Zealand

At 7pm, December 2, Dan Hopkins will start the first of 65 gruelling hours of outdoor bowls at the Hampstead Bowling Club, Ashburton. Dan, a keen and competitive bowler, plans to bowl for 65 hours straight, with a 10-minute (bankable) break in each hour. ... More >>

Kiwis Challenged To Sweat For CF This September

Monday, 24 August 2020, 3:41 pm | Cystic Fibrosis New Zealand

SWEATEMBER challenges Kiwis to commit to any sweaty activity throughout September to get fit and raise money to support New Zealanders living with cystic fibrosis (CF). CF is a progressive, genetic condition that causes persistent lung infections ... More >>

Cystic Fibrosis NZ Mourns Loss Of Patron Sir Bob Elliott

Saturday, 22 August 2020, 2:09 pm | Cystic Fibrosis New Zealand

Cystic Fibrosis NZ, and the CF community, mourns the loss of their patron Sir Bob Elliott. Sir Bob made an extraordinary, lifelong contribution to cystic fibrosis, notably for his work on the new-born screening test, which he believed added 30 years ... More >>

Access For Aotearoa - Campaigning For Access To Modern Medications For Kiwis With Cystic Fibrosis

Monday, 3 August 2020, 3:49 am | Cystic Fibrosis New Zealand

Cystic fibrosis (CF) is a progressive genetic condition that causes persistent lung infections and limits the ability to breathe over time. There is no cure and one in 25 New Zealanders carry the faulty gene that causes CF.  It took eight ... More >>

“Thrilled & Relieved” Vital Drug May Be Funded

Friday, 24 January 2020, 1:43 pm | Cystic Fibrosis New Zealand

Years of lobbying appear to have paid off in the fight for funding of a revolutionary drug to treat cystic fibrosis. More >>

Wellington Airport concourse decked for Cystic Fibrosis

Friday, 29 November 2019, 1:02 pm | Cystic Fibrosis New Zealand

Passengers travelling through Wellington Airport are being treated to the sight of over 30 unique Christmas trees twinkling across the concourse – all in the name of charity. More >>

Fight for groundbreaking treatment goes to Parliament today

Friday, 22 November 2019, 8:29 am | Cystic Fibrosis New Zealand

It’s been hailed as a wonder drug with the potential to change dozens of lives. But Kalydeco, a breakthrough treatment for a strand of cystic fibrosis called G551D, sits languishing on PHARMAC’s funding list amongst 100+ other medications not available ... More >>

Which F* will you give? Cystic Fibrosis NZ annual appeal

Tuesday, 13 August 2019, 10:11 am | Cystic Fibrosis New Zealand

This August Cystic Fibrosis NZ is asking the public to ‘give an F* for CF’ by donating to its Annual Appeal, which officially runs from 12 – 18 August 2019, including street collections on the Friday and Saturday. More >>

PHARMAC must fund breakthrough treatment

Monday, 1 October 2018, 9:15 am | Cystic Fibrosis New Zealand

Cystic Fibrosis NZ and Kalydeco for Kiwis have launched a joint campaign urging PHARMAC to fund the cystic fibrosis treatment Kalydeco. More >>

Cystic Fibrosis Awareness Week

Wednesday, 15 August 2018, 12:01 pm | Cystic Fibrosis New Zealand

Cystic Fibrosis Awareness Week – can you help New Zealanders living with Cystic Fibrosis increase their life expectancy? More >>

Cystic Fibrosis – It’s Literally Breath Taking

Friday, 11 August 2017, 1:39 pm | Cystic Fibrosis New Zealand

CYSTIC FIBROSIS – IT’S LITERALLY BREATH TAKING Annual Cystic Fibrosis Awareness Week highlights challenging genetic disorder and the 500 resilient people in New Zealand living with it Cystic fibrosis is a life-limiting condition. It can limit ... More >>

Christmas Tree Festival

Thursday, 17 November 2016, 2:39 pm | Cystic Fibrosis New Zealand

Christmas trees decorated by the All Blacks and Wellington Phoenix will light up Wellington International Airport this Christmas as part of the Wellington Xmas Tree Festival in aid of Cystic Fibrosis. More >>

Cystic Fibrosis Awareness Week 15 August – 21 August

Thursday, 11 August 2016, 1:33 pm | Cystic Fibrosis New Zealand

Next week marks Cystic Fibrosis Awareness Week, with several events planned around the country to help raise funds for the Cystic Fibrosis community in New Zealand. More >>

 

 
 
 
 
 

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