Patient Voice Aotearoa - Latest News [Page 2]
Statement And FAQs Re: Pharmac Review
Tuesday, 2 March 2021, 9:18 am | Patient Voice Aotearoa
Patient Voice Aotearoa (PVA) welcomed the Government’s indication that it will announce a review of its drug purchasing agency Pharmac. Since its inception, PVA has asked for more scrutiny of a system which sees thousands of kiwis stranded without ... More >>
A Red Flag For A Green Party
Sunday, 26 July 2020, 6:10 am | Patient Voice Aotearoa
The Green’s released their policy document yesterday for the coming election titled “Think Ahead.” Within their Health policy it states the Party will “Uphold the independence and strength of PHARMAC.” Within their Human Rights policy it ... More >>
Let Them Live
Wednesday, 3 June 2020, 4:03 pm | Patient Voice Aotearoa
These kids belong to a group of 35 New Zealand children who suffer from the motor neuron disease Spinal Muscular Atrophy (SMA). Spinraza would change these kids’ lives and is funded in over 50 countries but not in New Zealand. The annual estimated ... More >>
Petitions Presented: A United Stand for Medicines
Thursday, 21 November 2019, 2:06 pm | Patient Voice Aotearoa
Today at Parliament at 12.30 pm, eight petitions are being presented for medicines to be funded for a number of diseases to Members of Parliament from ACT, National, Labour and NZ First. Representatives of the political parties will speak, as well ... More >>
Potential Lamotrigine Drug Switch Deaths
Tuesday, 19 November 2019, 4:39 pm | Patient Voice Aotearoa
Patient Voice Aotearoa are deeply saddened by the loss of four lives that are potentially related to Pharmac switching 10,000 epilepsy patients from the drugs Lamictal and Arrow-Venlafaxine to Logem for a savings of $30 million dollars. Also of concern ... More >>
Patients with rare disorders encouraged to leave NZ to live
Tuesday, 29 October 2019, 10:29 am | Patient Voice Aotearoa
These images were taken last week at Rotorua Hospital of three-year old Tama. Tama has a degenerative disease called Spinal Muscular Atrophy (SMA). There is a treatment called Spinraza that is revolutionary and is designed to stop the disease in its ... More >>
Deputy Prime Minister Admits Pharmac Needs More Money
Wednesday, 16 October 2019, 1:53 pm | Patient Voice Aotearoa
Patient Voice Aotearoa welcomes the comments made by the Deputy Prime Minister Winston Peters on ‘The Project’ on Friday last week. Peters stated “Right now…we know we are not spending nearly enough on pharmaceuticals and first world drugs…the ... More >>
Cancer Boss Insults Cancer Patients and their Families
Saturday, 28 September 2019, 1:16 pm | Patient Voice Aotearoa
Comments attributed to Diana Safarti, New Zealand’s Interim National Director of Cancer Control in today’s ‘National Portrait’ article on Stuff, have insulted a great many whose families are living with a loved one with advanced cancer. Safarti ... More >>
Patient Voice Aotearoa calls for Pharmac reform
Wednesday, 28 August 2019, 5:08 pm | Patient Voice Aotearoa
Patient Voice Aotearoa (PVA) has launched a petition calling for the Minister of Health to initiate an external reform of Pharmac and to double the agency’s budget immediately, with a plan to triple its budget over the next two years in order to ... More >>
Nine New Parliamentary Petitions launched for vital medicine
Thursday, 15 August 2019, 9:55 am | Patient Voice Aotearoa
In the last 10 months alone, 11 petitions have been delivered to Parliament calling for medicines to be funded by Pharmac. Today, another nine petitions have been launched by Patient Voice Aotearoa (PVA) members asking that life changing, saving and extending ... More >>
New Zealand Ranks Last in OECD for Medicines Access Again
Monday, 12 August 2019, 9:43 am | Patient Voice Aotearoa
The 2019 IQVIA ‘International Comparisons of Modern Medicines’ (ICoMM) Report, which compares the public funding of modern medicines in 20 OECD countries, paints a bleak picture for New Zealanders who desperately need access to medicines. Despite ... More >>
Too little, too late? Advocates underwhelmed by cancer plan
Monday, 5 August 2019, 10:07 am | Patient Voice Aotearoa
Just two days after the Parliamentary Health Select Committee quietly rejected Metavivors’ calls for Kadcyla and Palbociclib (Ibrance) to be funded for breast cancer sufferers and for an inquiry into Pharmac; Labour has today unveiled the first part of its ... More >>