Rare Disorders NZ - Latest News [Page 1]

Let your voice count to make a difference

Monday, 18 November 2019, 2:28 pm | Rare Disorders NZ

Would you like to play a part in highlighting the barriers within the current health system for people living with rare disorders? Complete this survey and share your experiences. More >>

UN recognition for all people living with a rare disease

Tuesday, 24 September 2019, 2:35 pm | Rare Disorders NZ

Rare Disorders NZ (RDNZ) congratulates Rare Diseases International for ensuring that the UN Member States adopted a political declaration on universal health coverage (UHC) that includes mention of rare diseases. More >>

People with rare health conditions need equitable treatment

Monday, 2 September 2019, 2:13 pm | Rare Disorders NZ

Rare Disorders NZ (RDNZ) applauds the Government’s recent announcement on cancer care but is urging more action to support all New Zealanders with chronic health conditions. More >>

Medicines access for cancer must also be Fair for Rare

Tuesday, 30 July 2019, 2:14 pm | Rare Disorders NZ

Rare Disorders NZ welcomes the National Party’s recent announcement on cancer care but calls on both the opposition and the coalition government to widen their medicines access proposals beyond cancer to include provision for people living with rare disorders. More >>

Announcement of new Chief Executive

Thursday, 27 June 2019, 3:00 pm | Rare Disorders NZ

Rare Disorders NZ is thrilled to confirm the appointment of Lisa Foster as Chief Executive. More >>

NZORD changes name to Rare Disorders NZ

Wednesday, 5 June 2019, 2:58 pm | Rare Disorders NZ

Today the New Zealand Organisation for Rare Disorders changes its name after 19 years of supporting thousands of families living with rare health conditions. More >>

 

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