Patient Voice Aotearoa - Latest News [Page 1]

A Mother’s Day Message From Patient Voice Aotearoa

Friday, 6 May 2022, 1:32 pm | Patient Voice Aotearoa

Parents Voice Aotearoa wants to acknowledge those whānau who have lost their mums and who will be experiencing Mother’s Day without their loved ones. More >>

Trikafta Parliamentary Petition Delivered Today

Monday, 28 March 2022, 9:32 am | Patient Voice Aotearoa

Today, the New Zealand Cystic Fibrosis community are calling upon the Government and Pharmac to fund a wonder drug, Trikafta. We, Patient Voice Aotearoa, stand in solidarity with them. For many people with cystic fibrosis, the drug will make their ... More >>

Thirty-six Medicines Added To Pharmac’s Waiting List As New Zealand’s Medicines Crisis Worsens

Thursday, 10 March 2022, 10:06 am | Patient Voice Aotearoa

Pharmac has just released its Options for Investment (OFI) list, which includes 36 new medicines since it was updated in July 2021. The OFI includes all medicines that Pharmac would fund if its budget allowed. “We have known for years that there ... More >>

‘Interim’ Report But Permanent Change Needed

Tuesday, 7 December 2021, 12:13 pm | Patient Voice Aotearoa

Last week the interim report into Pharmac was released by the Pharmac Review Panel. Patient Voice Aotearoa welcomed this interim report. During the leaders’ debate, prior to the last election, Prime Minister Ardern promised an investigation into ... More >>

DEAD LAST: Patient Voice Aotearoa Calls For Urgent Government Funding To Clear Pharmac’s Waiting List

Thursday, 18 November 2021, 6:43 am | Patient Voice Aotearoa

The IQVIA ‘International Comparison of Modern Medicines’ Report, released today, which compares the public funding of modern medicines in 20 OECD countries, makes grim reading for New Zealanders who desperately need access to modern medicines. ... More >>

Patient Voice Aotearoa Colmar Brunton Survey Results

Sunday, 10 October 2021, 8:31 pm | Patient Voice Aotearoa

Over 3 in 10 New Zealanders know someone who has had to pay for an unfunded medicine Nearly 1 in 2 New Zealanders believe access to modern medicines is worse compared to other developed countries Majority of New Zealanders believe it is “extremely ... More >>

Lie Down For Life: Today

Wednesday, 12 May 2021, 3:46 pm | Patient Voice Aotearoa

One in 50 New Zealanders have today demanded a significant budget increase and independent review of Pharmac. Their voices were heard loud and clear at a series of protests held across the country, culminating in the 100,000 person-strong petition being ... More >>

Statement And FAQs Re: Pharmac Review

Tuesday, 2 March 2021, 9:18 am | Patient Voice Aotearoa

Patient Voice Aotearoa (PVA) welcomed the Government’s indication that it will announce a review of its drug purchasing agency Pharmac. Since its inception, PVA has asked for more scrutiny of a system which sees thousands of kiwis stranded without ... More >>

A Red Flag For A Green Party

Sunday, 26 July 2020, 6:10 am | Patient Voice Aotearoa

The Green’s released their policy document yesterday for the coming election titled “Think Ahead.” Within their Health policy it states the Party will “Uphold the independence and strength of PHARMAC.” Within their Human Rights policy it ... More >>

Let Them Live

Wednesday, 3 June 2020, 4:03 pm | Patient Voice Aotearoa

These kids belong to a group of 35 New Zealand children who suffer from the motor neuron disease Spinal Muscular Atrophy (SMA). Spinraza would change these kids’ lives and is funded in over 50 countries but not in New Zealand. The annual estimated ... More >>

Petitions Presented: A United Stand for Medicines

Thursday, 21 November 2019, 2:06 pm | Patient Voice Aotearoa

Today at Parliament at 12.30 pm, eight petitions are being presented for medicines to be funded for a number of diseases to Members of Parliament from ACT, National, Labour and NZ First. Representatives of the political parties will speak, as well ... More >>

Potential Lamotrigine Drug Switch Deaths

Tuesday, 19 November 2019, 4:39 pm | Patient Voice Aotearoa

Patient Voice Aotearoa are deeply saddened by the loss of four lives that are potentially related to Pharmac switching 10,000 epilepsy patients from the drugs Lamictal and Arrow-Venlafaxine to Logem for a savings of $30 million dollars. Also of concern ... More >>

Patients with rare disorders encouraged to leave NZ to live

Tuesday, 29 October 2019, 10:29 am | Patient Voice Aotearoa

These images were taken last week at Rotorua Hospital of three-year old Tama. Tama has a degenerative disease called Spinal Muscular Atrophy (SMA). There is a treatment called Spinraza that is revolutionary and is designed to stop the disease in its ... More >>

Deputy Prime Minister Admits Pharmac Needs More Money

Wednesday, 16 October 2019, 1:53 pm | Patient Voice Aotearoa

Patient Voice Aotearoa welcomes the comments made by the Deputy Prime Minister Winston Peters on ‘The Project’ on Friday last week. Peters stated “Right now…we know we are not spending nearly enough on pharmaceuticals and first world drugs…the ... More >>

Cancer Boss Insults Cancer Patients and their Families

Saturday, 28 September 2019, 1:16 pm | Patient Voice Aotearoa

Comments attributed to Diana Safarti, New Zealand’s Interim National Director of Cancer Control in today’s ‘National Portrait’ article on Stuff, have insulted a great many whose families are living with a loved one with advanced cancer. Safarti ... More >>

Patient Voice Aotearoa calls for Pharmac reform

Wednesday, 28 August 2019, 5:08 pm | Patient Voice Aotearoa

Patient Voice Aotearoa (PVA) has launched a petition calling for the Minister of Health to initiate an external reform of Pharmac and to double the agency’s budget immediately, with a plan to triple its budget over the next two years in order to ... More >>

Nine New Parliamentary Petitions launched for vital medicine

Thursday, 15 August 2019, 9:55 am | Patient Voice Aotearoa

In the last 10 months alone, 11 petitions have been delivered to Parliament calling for medicines to be funded by Pharmac. Today, another nine petitions have been launched by Patient Voice Aotearoa (PVA) members asking that life changing, saving and extending ... More >>

New Zealand Ranks Last in OECD for Medicines Access Again

Monday, 12 August 2019, 9:43 am | Patient Voice Aotearoa

The 2019 IQVIA ‘International Comparisons of Modern Medicines’ (ICoMM) Report, which compares the public funding of modern medicines in 20 OECD countries, paints a bleak picture for New Zealanders who desperately need access to medicines. Despite ... More >>

Too little, too late? Advocates underwhelmed by cancer plan

Monday, 5 August 2019, 10:07 am | Patient Voice Aotearoa

Just two days after the Parliamentary Health Select Committee quietly rejected Metavivors’ calls for Kadcyla and Palbociclib (Ibrance) to be funded for breast cancer sufferers and for an inquiry into Pharmac; Labour has today unveiled the first part of its ... More >>